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Publications

This page comprises a collection of publications authored or co-authored by members of the Bionetworking in Asia ESRC and ERC teams, providing an insight into the work of individual members, and the team as whole.  Some publications are available to download.

 

Adrian Ely

Ely, A. and Scoones, I. (2009) The Global Redistribution of Innovation: Lessons from China and India, STEPS Working Paper 22, Brighton: STEPS Centre. – Click here for full article 

Chen, Y. and Ely, A. (2011) Health Biotechnology Innovation for Social Sustainability – A Perspective from China, STEPS Working Paper 47, Brighton: STEPS Centre. – Click here for full article

 

Hung-Chieh Chang

Chang, Hung-Chieh. (2014) The third way of umbilical cord blood banking. Nature Biotechnology 32(4): 318 – 319. Click here for full article

Chang, Hung-Chieh. (2015) The normalisation of body gifting in Taiwan. BioSocieties 1745-8552: 1 -17.  Click here for full article

 

Carolyn Heitmeyer

(accepted) Heitmeyer, Carolyn. (2016)  Biogovernance beyond the state?: The shaping of stem cell therapy by patient organisations in India. Medical Anthropology. Click here for full article

 

Prasanna Patra

BOOKS:

J. Dash, P.K. Patra and K.C. Satapahthy (Eds.) (2014). Dimension of Healthcare System among Tribal and Other Communities. SSDN Publishers and Distributors, New Delhi. ISBN: 9789383158287.

J. Dash, P.K.Patra and K.C. Satapahthy (Eds.) (2013). Ethnomedical Practices in Tribal Areas. SSDN Publishers and Distributors, New Delhi. ISBN: 9789381839188.

P.K.Patra and A.K.Kapoor (2009). Demography and Development Dynamics in a Primitive Tribe of the Himalayas. International Book Distributors, Dehradun, India. (ISBN 9788170893622)

RESEARCH PAPERS:

Patra, P.K., and M. Sleeboom-Faulkner. (2013). Discursive Dialects of Bioethics: Understanding the institutional embeddings of human stem cell experimentation in India. BioSocieties, Vol. 8, No.1, pp. 75-92. (ISSN: 1745-8552)

Sahoo, A, P.K. Patra, and R.P. Mohanty. (2013). Opportunity for Natural Selection among the migrant Santal community of Bhubaneswar. The Anthropologist, 16 (3):pp. 761-763. (ISSN: 0972-0073)

Patra, P.K., and M. Sleeboom-Faulkner. (2011). Recruiter-patients as ambiguous symbols of health – bionetworking and stem cell therapy in India. New Genetics and Society, Vol.30, No.2, 155-166. (ISSN 1463-6778 (Print), 1469-9915 (Online)

Sleeboom-Faulkner, M., and P.K. Patra. (2011). Experimental Stem Cell Therapy: Biohierarchies and Bionetworking in Japan and India. Social Studies of Science, Vol. 41, No.5, pp. 645-666.  (ISSN:0306-3127 (Print), 1460-3659 (Online).

Patra, P.K., and M. Sleeboom-Faulkner. (2011). Notions of Risk among marginalized communities in India: Sickle cell intervention programmes and risk as a precursor of change. International Journal of Development and Social Research (IJDSR), Vol.5, Pp. 47-61.

Patra, P.K., and M. Sleeboom-Faulkner. (2010). Bionetworking: between guidelines and practice in stem cell therapy enterprise in IndiaSCRIPTed – A Journal of Law, Technology and Society,7,295-310. – Read more (Published by SRIPTed under creative commons licence) Click here for full article

Patra, P.K., and M. Sleeboom-Faulkner. (2009). Bionetworking: Experimental stem cell therapy and patient recruitment in India Anthropology & Medicine 16(2): 147-163, 2009. Routledge, London. –  Click here for full article

Patra, P.K., and Sleeboom-Faulkner, Margaret. (2010). Informed consent and benefit sharing in genetic research and biobanking in India: some common impediments in practice. In Peter Dabrock, Jochen Taupits & Jens Ried (eds) Trust in Biobanking. Dealing with ethical, legal and social issues in an emerging field of biotechnology. London & New York: Springer. Chapter 11, pp. 121-136. Cick here to read more

Patra, P.K., and Sleeboom-Faulkner, Margaret. (2009). Informed consent in genetic research and biobanking in India: some common impedimentsGenomics, Society and Policy, Vol. 5, No.1, pp 100-113. Click here for full article

Patra, P.K., and Sleeboom-Faulkner, Margaret. (2009). The Indian genomic biobank initiative and emerging bioethical issues: a community based perspective. In Human Genetic Biobanks in Asia: Politics of trust and scientific advancement, Routledge.

BOOK CHAPTERS:

Patra, P.K. (2014). Reassembling populations: questions of eugenics in China, India and Japan (a Case study contribution, case-4, as a co-author with MSF, Chapter-2, pp.24-53). In: Sleeboom-Faulkner, M. (ed.), Global morality and life science practices in Asia: assemblages of life. Health, Technology and Society series. Palgrave MacMilan, UK/USA. ISBN: 978-0-230-27483-9.

 

Patra, P.K. (2014). Biopower and life assemblages: genetic carrier testing in India, China and Japan. (a Case study contribution, case-7, as a co-author with MSF, Chapter-3, pp.54-79). In: Sleeboom-Faulkner, M. (ed.), Global morality and life science practices in Asia: assembleges of life. Health, Technology and Society series. Palgrave MacMilan, UK/USA. ISBN: 978-0-230-27483-9.

 

Patra, P.K. (2014). Life assembledges and Bionetworking: Developments in experimental stem cell therapies in India and Japan, (two Case studies, cases 16&17, contribution as a co-author with MSF, Chapter-7, pp. 159-184). In: Sleeboom-Faulkner, M. (ed.), Global morality and life science practices in Asia: assembleges of life. Health, Technology and Society series. Palgrave MacMilan, UK/USA. ISBN: 978-0-230-27483-9.

Patra, P.K., and M. Sleeboom-Faulkner (2012). Informed consent and benefit sharing in genetic research and biobanking in India: some common impediments in practice, in Dabrock, Peter; Ried, Jens; Taupitz, Jochen (eds.): Trust in Biobanking. Dealing with Ethical, Legal and Social Issues in an Emerging Field of Biotechnology. Springer: Heidelberg / Berlin. (ISBN/ISSN: 9783540788447 3540788441).

Achim Rosemann

(accepted) Rosemann, Achim.  (2016) Challenges to international stem cell clinical trials in countries with divergent regulations.  In Phuc, VP (ed) Stem Cells in Clincal Applications:  Safety, Ethics and Regulations. Heidelberg and London: Springer.

Rosemann, Achim, and Sleeboom-Faulkner, Margaret.  (TBD) New regulation for clinical stem cell research in China: expected impact and challenges for implementation. Regenerative Medicine, 10 (6).  ISSN 1746-0751 (In Press). Click here for full article

(accepted) Rosemann, Achim.  (TBD) The pluralization of the international: networks of resistance and alter-standardization in regenerative stem cell medicine. Social Studies of Science, December 27, 2015. Click here for full article

Rosemann, Achim. (2015) Multi-country stem cell trials: the need for an international support structure. Stem Cell Research. ISSN 1873-5061 (In Press)  Click here for full article

Rosemann, Achim.  (2015) Stem cell treatments for neurodegenerative diseases: challenges from a science, business and healthcare perspective, Neurodegenerative Disease Management, 5(2), pp. 85-87. (2015). Click here for full article

Rosemann, Achim.  (2015) Modalities of value, exchange, solidarity: the social life of stem cells in China, in: M. Sleeboom-Faulkner (Ed.) Stem Cell Research in Asia: Looking beyond regulatory exteriors. London/New York: Routledge. Click here to read more

Rosemann, Achim.  (2014) Standardization as situation-specific achievement: Regulatory diversity and the production of value in intercontinental collaborations in stem cell medicine, Social Science & Medicine, 122, pp. 72 -80.  Click here for full article

Rosemann, Achim.  (2014) Why regenerative stem cell medicine progresses slower than expected, Journal of Cellular Biochemistry. DOI: 10.1002/jcb.24894  Click here for full article

Rosemann, Achim.  (2013) Scientific Multipolarization: Its impact on international clinical research collaborations and theoretical implications, Science Technology and Society, 18(3), pp. 339-359.  Click here for full article

Rosemann, Achim.  (2013) Medical Innovation and National Experimental Pluralism: Insights from Clinical Stem Cell Research and Applications in China, Biosocieties, 8(1), pp. 58-74.  Click here for full article

Rosemann, Achim.  (2012) Multi-polar Technoscience: Clinical Science Collaborations in a Changing World System, PhD Dissertation.

Rosemann, Achim.  (2011) Modalities of Value, Exchange, Solidarity: Exploring the Social Life of Stem Cells in China, New Genetics and Society, Vol. 30, No. 2, pp. 181-192.  Click here for full article

Rosemann, Achim.  (2009) The IVF-Stem Cell Interface in China: Ontologies, Value-perceptions and Donation-practices of Embryonic Forms of Life, in O. Doering (ed.), Life Sciences in Translation – A Sino-European Dialogue on Ethical Governance of the Life Sciences, BIONET, Online Textbook, delivery to the EU Commission, pp. 168-179.  Click here for full chapter

Rosemann, Achim.  (2009) Life without Value? Listening to the voices of embryo donors for human embryonic stem cell research in China, IIAS Newsletter, No 52, winter 2009, pp. 15-6.  Click here for full article

 

Margaret Sleeboom-Faulkner

Sleeboom-Faulkner, Margaret. (2016). The large grey area between ‘bona fide’ and ‘rogue’ stem cell interventions — Ethical acceptability and the need to include local variability, Technological Forecasting and Social Change, 109: 76-86.  Click here for full article

Shanghai Conference MSF Click here for full document

Sleeboom-Faulkner, M., C.K. Chekar, A. Faulkner, C. Heitmeyer, M. Marouda, A. Rosemann, N. Chaisinthop, H.-C. Chang, A. Ely, M. Kato, P.K. Patra, Y. Su, S. Sui, W. Suzuki, X. Zhang. (2016). Comparing national home-keeping and the regulation of translational stem cell applications: An international perspective, Social Science & Medicine, 153: 240-249.  Click here for full article

Sleeboom-Faulkner, Margaret and Sui, Suli. (2015).  Commercial Genetic Testing and its Governance in Chinese Society.  Minerva, 53. pp. 215-234.  Click here for full article

Sleeboom-Faulkner, Margaret. (2014). The ‘Good’ Child: anthropological perspectives on morality and childhood. The Journal for Moral Education, 43 (2). ISSN 0305-7240 (with Meike Fechter). Click here for full article

Sleeboom-Faulkner, Margaret. (2014). Bioethical governance in South Korea: tensions between bottom-up movements and professionalization, and scientific citizenship. East Asia Journal for Science and Technology Studies (EASTS), 8(2): 209-228 with Seyoung Hwang (major contributor). Click here for full article

Sleeboom-Faulkner, Margaret. (2013). Regulating ‘respect’ for the embryo: Social mindscapes and human embryonic stem cell research in Japan. Science, Technology and Society, November 2013 vol. 18 no. 3 361-377. Click here for full article

Sleeboom-Faulkner, Margaret. (2013). Regulating ‘respect’ for the embryo: Social mindscapes and human embryonic stem cell research in Japan. Social Science & Medicine, Ayo Wahlberg, Christoph Rehmann-Sutter, Margaret Sleeboom-Faulkner, Guangxiu Lu, Ole Döring, Yali Cong, Alicja Laska-Formejster, Jing He, Haidan Chen, Herbert Gottweis. Dec 2013, 98: 293-300. Click here for full article

Sleeboom-Faulkner, Margaret. (2013). Regulating ‘respect’ for the embryo: Social mindscapes and human embryonic stem cell research in Japan. Biosocieties, 8, 75-92 with Prasanna K. Patra (major contributor). Click here for full article

Sleeboom-Faulkner, Margaret. (2013). Introduction to ‘Experimental Ethics’, Biosocieties, 8: 1-7. [SSCI 2.192]

Sleeboom-Faulkner, Margaret. (2013). The (in)visibility of women’s work, efforts and experiences in embryo donation: The Case of Japan. Gender, Place and Culture 20 (6) 737-53.[SSCI, 1.030] with Masae Kato. Click here for full article

Sleeboom-Faulkner, Margaret. (2013). The Harvard case of Xu Xiping: Exploitation of the people, scientific advance or genetic theft? In: Jagannath Dash, Prasanna Kumar Patra, Kanhu Charan Satapathy (eds.) Dimensions of Healthcare Systems Among Tribal and Other Communities. Odisha: Utkal Univesrity. Pp: 29-61.

Sleeboom-Faulkner, Margaret and Hwang, Seyoung.(2012). Governance of stem cell research: public participation and decision-making in China, Japan, South-Korea, Taiwan and the UK. Social Studies of Science,No. 42, Vol. 4, pp. 1-25. Click here for full article

Sleeboom-Faulkner, Margaret.(2011). Stem Cell Research in Asia: Looking beyond formal regulatory exteriorsNew Genetics and Society, No. 2 and 3, Double Special Issue. Routledge, London. Click here for full article

Sleeboom-Faulkner, Margaret and Patra, Prasanna K.(2011). Experimental stem cell therapy: Biohierarchies and bionetworking in Japan and IndiaSocial Studies of Science, 41(5), October 2011, pp. 696-707.    – Click here for full article

Sleeboom-Faulkner, Margaret.(2011). Stem Cell Research in Asia: Looking beyond formal regulatory exteriorsNew Genetics and Society, Vol. 30, No. 3, pp. 279-288, (Special Issue). Routledge, London. – Click here for full article

Sleeboom-Faulkner, Margaret.(2011). Regulating Cell Lives in Japan: Avoiding Scandal & Sticking to NatureNew Genetics and Society, No. 3, 2011, pp. 227-240. Routledge, London. Click here for full article

Sleeboom-Faulkner, Margaret.(2010). National Risk Signatures and Human Embryonic Stem Cell Research in Mainland ChinaHealth, Risk and Society, Vol. 12, Issue 5 October 2010, pp. 491 – 511. Routledge, London. Click here for full article

Sleeboom-Faulkner, Margaret.(2010. Boundary making and good stem cell research MSF 2010East Asia Journal for Science and Technology Studies (EASTS),  Vol. 4, Issue 1, pp 31-51. Click here for full article

Sleeboom-Faulkner,Margaret. (2009). Human Genetic Biobanks in Asia: Politics of Trust and Scientific Advancement. London: Routledge.

Sleeboom-Faulkner, Margaret . (2009). Biobanking in Transnational Perspective. In Ole Doering (ed.) Ethical Governance of Biological and Biomedical Research: Chinese-European Co-operation, Ch. 3: pp. 28-32.

Sleeboom-Faulkner, Margaret . (2009). Human Genetic Biobanking in Asia: Issues of Trust, Wealth and Ambition. In Margaret Sleeboom-Faulkner (ed.) Human Genetic Biobanks in Asia: Politics of trust and scientific advancement. Routledge. Click here to read more

Sleeboom-Faulkner, Margaret. and Patra, P.K.(2008). The Bioethical Vacuum: National Policies on Human Embryonic Stem Cell Research in India and China Journal of International Biotechnology Law [JIBL] 5(6): 221-234, December. De Gruyter, Berlin. Click here for full article

Sleeboom-Faulkner, Margaret.(2008). The changing nature of ideology in the life sciences in the People’s Republic of China (PRC). Case studies of human cloning and human embryonic stem cell research (hESR) in medical textbooks (1996-2005)Biosocieties, Vol. 3, April, pp. 21-36. Palgrave Macmillan, Basingstoke.  Click here for full article

Sleeboom-Faulkner, Margaret.(2008). Debates on Human Embryonic Stem Cell Research in Japan: Minority Voices and their AmplifiersScience as Culture, 17(1) March, pp. 85-97. Routledge, London.- Click here for full article

Sleeboom-Faulkner, Margaret. (2007). Collecting families: An institutional approach to human genetic biobanking in IndonesiaIn The Asian Social Science Journal, 36(1), pp. 626-656. Click here for full article

 

Su, Yeyang

Su Y. Learning from and working with the diabetes patients for patient advocacy. Chinese Journal of Diabetes. 2015, 23(3): 193-194. Click here for full article

 

Suli Sui

 

Sui, Suli and Sleeboom-Faulkner, Margaret. (2015).  Commercial Genetic Testing and its Governance in Chinese Society.  Minerva, 53. pp. 215-234.  Click here for full article

Sui, Suli.  (2014). The cord blood bank and its related issues in China. (In Chinese) Chinese Journal of Family Planning, (2014) Volume 22 No. 4. pp. 220-4.

Sui, Suli (2014). Is stem cell therapy a lifesaver? Patients’ experiences of and views on stem cell therapy in China. The Innovia Foundation Newsletter, July 2014(23), pp. 8-11. Click here to read more

Sui, Suli (2013). The Understanding on the Governance of Stem Cell in China. Journal of China Hospital CEO, 2013 (5), pp. 74-5.

Sui, Suli and Sleeboom-Faulkner, Margaret (2010). Choosing offspring: prenatal genetic testing for thalassaemia and the production of a ‘saviour sibling’ in ChinaCulture, Health & Sexuality, Vol. 12, No. 2, pp.167-175. Routleadge, London.- Click here to read more

Xinqing Zhang

Wang, Li., Zhang, Xinqing and Qiu, Ren.(2011). Ethical Reflection on Epidemiological Research in China. Chinese Medical Ethics, Vol. 24, No. 3. – Click here to read more

Li, Zhao-yi., Wang, Zhi-jie., Zhang, Xinqing. and Liu, Xue-ying.(2009).Causes and Countermeasures of Violent Trespass against Medical Right. Chinese Medical Ethics, Vol. 22, No. 4. – Click here to read more

Matsui, Kenji., Abou Zeid, Alaa., Zhang, Xinqing et al. (2009). ‘Informed Consent to Future Research on Stored Tissue Samples: the Views of Researchers, Ethics Review Committee Members and Policy Makers in Five Non-Western Countries’Asian Bioethics Review, Vol. 1, Issue 4, pp. 401-416. – Click here to read more

Xinqing, Zhang. (2008). Gene Therapy in PR China: Regulations and Ethical Concerns. Journal of International Biotechnology Law [JIBL], Vol. 2, Issue 5, pp. 212–216. De Gruyter. – Click here to read more

Zhang, Xinqing., Fan, Chun-liang. and Chen, Qi. (2007). Ethical Reflection on the sources of Human Embryonic Stem Cell .Chinese Medical Ethics, Vol. 20, No. 6. – Click here to read more